Leadership

EXECUTIVE DIRECTOR

Kenneth T. Singleton

FOUNDING DIRECTOR

Estelle L. Benson

DEPUTY DIRECTOR

Bob Nelson

FOUNDATION OFFICERS

Philip Kinnicutt – President

Patricia H. Blomkwist-Markens – Vice President of International Activities

K. Robert Doehrman – Vice President

Elizabeth B. Emerson – Vice President

Joel Steinberg – Vice President

Ginger Crooks – Treasurer

Santo Garcia – Secretary

BOARD of DIRECTORS

Sue Baier

David R. Cornblath, MD

Jim Crone

Santo Garcia

Susan Keast

Laura E. Stegossi, Esq.

Marilyn Tedesco

Kassandra Ulrich

MEMBER

National Organization for Rare Disorders, Inc. (NORD)

National Coalition for Research in Neurological Disorders

Research! America

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