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Although most people recover from GBS and CIDP, the duration
of the illness is unpredictable and often months of hospital
care are required. Thus, both patient and family undergo the
emotional trauma of an uncertain future, not knowing if and
when recovery will occur. To assist patients and their families
to cope with GBS/CIDP, the Foundation provides emotional support
to patients and their loved ones.
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Provides, when possible, personal visits
by former patients to those currently in hospitals and rehabilitation
centers.
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Supplies literature and educational material,
including a comprehensive 70-page booklet entitled "An
Overview for the Layperson" so patients and families
can learn what to expect during the illness, as well as Guidebooks
for Caregivers, and for children with GBS. Trifolds are available
in English, Spanish, Italian, French, Japanese, Hindi, Arabic,
and others.
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Educates the public and medical communities
via sponsorship of local chapters and support groups.
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Fosters and funds research into cause, treatment
and other aspects of the disorder.
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Directs patients with long-term disabilities
to resources for vocational, financial and other assistance.
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Develops national and international support
groups.
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Encourages financial support for community
activities.
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Sponsors International Educational Symposia
for the medical community and general public.
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Publishes The Communicator, a quarterly informational
newsletter.
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The Holly Building - 104 1/2 Forrest Avenue - Narberth, PA 19072
Phone: 610-667-0131 - Fax: 610-667-7036
Toll Free: 1-866-224-3301 |
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