Foundation Leadership

- EXECUTIVE DIRECTOR -
Patricia A. Bryant

- FOUNDING DIRECTOR -
Estelle L. Benson

- CHIEF FINANCIAL OFFICER -
Camille Yee

- FOUNDATION OFFICERS -
Thelma Gifford, RN - President
Sue D. Baier- Vice President
Joel Steinberg, MD, Ph.D. - Vice President
Phil Kinnicutt - Secretary
Henry Friedman - Treasurer
Jerry R. Jones - Treasurer

- HONORARY BOARD -
Rachel Chagall
Marjorie H. Downey
Andy Griffith
Joseph Heller*

- BOARD of DIRECTORS -
Robert Benson, CLU, ChFC
Patricia H. Blomkwist-Markens
Kenneth Robert Doehrman
Elizabeth B. Emerson
Susan Keast
Kim Koehlinger
Sara Voorhees Pessel, PMP
Kathryn Peters
Glennys Sanders
Laura E. Stegossi, Esq.
Marilyn Tedesco
Kassandra Ulrich

- MEDICAL ADVISORY BOARD -
Arthur K. Asbury, MD
Richard J. Barohn, MD
Mark J. Brown, MD
David Cornblath, MD
Marinos C. Dalakas, MD
Peter D. Donofrio, MD
Jonathan Goldstein, MD
Clifton L. Gooch, MD
Kenneth C. Gorson, MD
Michael C. Graves, MD
John W. Griffin, MD
Angelika F. Hahn, MD
Hans-Peter Hartung, MD
Thomas L. Hedge, MD
Professor Richard A. C. Hughes
Jonathan Katz, MD
Carol Lee Koski, MD
Richard A. Lewis, MD
Richard Lisak, MD
Gareth J. Parry, MD
David S. Saperstein, MD
Kazim A. Sheikh, MD
John T. Saldky, MD
Joel S. Steinberg, MD, PhD
Pieter A. van Doorn, MD
Professor Hugh J. Willison

- MEMBER -
National Organization for Rare Disorders, Inc. (NORD)
National Coalition for Research in Neurological Disorders
Research! America

*Deceased

Non-Profit 501(c)(3)
Official registration and financial information may be obtained
from the PA Department of State by calling toll free, within PA,
1-800-732-0999. Registration does not imply endorsement.