As the GBS community expanded, the Foundation chapters in the United Kingdom, Australia, India and Canada became full-fledged organizations in their own right. Since that time, the Foundation has expanded its interests and established additional groups for GBS variants, including CIDP, Children with GBS, Axonal GBS’ers, Camploybacter Precipitated GBS, and Teenagers with GBS.

Providing support and assistance to GBS/CIDP patients and their families and committed to increasing knowledge and awareness in both the public and professional communities, the Foundation provides print information and educational opportunities, sponsors worldwide meetings, lectures and support groups, hosts the bi-annual GBS/CIDP International Symposium and encourages new findings by awarding research grants for further study and experimentation. The organization continually raises awareness by exhibiting at neurological conferences all over the world, by direct mail, by personal contact with hospitals, emergency rooms and physicians, and through their quarterly newsletter, The Communicator. As new information becomes available, it is distributed to chapters and support groups who host local and regional meetings all over the world.

The Foundation's Medical Advisory Board includes experts in the diagnosis, treatment and research of GBS/CIDP, many of whom have authored textbooks on the disorder, and is considered to be the "think-tank" of GBS.

In keeping with its goals of education, support and research, the Foundation has extended its reach to the Internet, establishing interactive chat and discussion areas for patients, family and friends to network and communicate, and made sure that continual funding is available to support them.

The Foundation is funded by contributions from individuals who have been personally touched by GBS and by corporate sources. It has been acknowledged by the Voluntary Health Agency Community as being among the top in the field, and has been acclaimed as one of the few organizations where 100% of donations are used for the purpose for which they are collected.

GBS is a world-wide disorder. There is a need for better education of the medical and lay communities about this disorder, as well as better treatments. Additionally, because of its probable auto-immune nature, increased knowledge of GBS may well lead to a better understanding of, and treatments for, other auto-immune disorders.