Meningococcal vaccine/College Dorm

[gene]

hi eric,

you can never ask too many ques. you doc just does not know the answers. the fact that you are not feeling better suggests that you need a 2nd opinion. where do you live? i may be able to make a suggestion. the gbs damage due to vaccines is hard to get admission to much less a fix. avoid any that are egg based or have mercury in them. take care. be well.

gene gbs 8-99
in numbers there is strength

[Dawn Kevies mom]

Hi Eric,
If our doc told us we asked too many questions, I would as one more question,"What are we doing here?" Regarding the vaccine, Kevin WILL NOT be getting the vaccine, as well, since there obviously is a genetic predisposition to autoimmune disease in our family, I will not get my healthy 14 y/o the vaccine either. I will probably buy a condo or rent an apartment. I personally can not go through this with another child, I may not have the stregnth and courage to make it out the other end. It is a very hard choice! Good luck in your decision.
Dawn

[Carla]

This past Fall I was very nervous about my daughter going to a large university without having the vaccination. I did a lot of research and found that there is a vaccination that can be given to people with GBS/CIDP. You need to be sure to get the right one. My daughter received the vaccine and has not had any problems. She is on IVIG and also Cellcept and I was very concerned about her getting sick.

[Stormy]

Hi guys,
I just wanted to let all of you know this. I am 44 and was diagnosed with GBS at the age of 40. Last spring my 21 year old daughter joined the Army National Guard and of course they were required to have all kinds of shots and such. However, when alyssa fillled out her form and the question was asked if any family member had ever been diagnosed with GBS and she put her mother, she as immediately taken aside and told she could not have the flu shot, nasal spray for something, another vaccine of some kind and is not allowed to give blood. I thought this was pretty drastic for someone who wasn't even diagnosed with it..makes me wonder if the army knows something that we don't know. Both of my kids will be starting college soon, alyssa will start march 31 and joshua will start this fall after he graduates high school and they have both chosen to live in an apartment. They havn't really discussed the concern of different illnesses but it was definitely in the back of my mind but i didn't want to scare them and i guess i want them to look at the risks and make their own decisions. Mainly because i won't be around forever and they need to know how to handle things. But, if my child was the one that had been diagnosed with GBS I would definitely have a hard time deciding what to do. Good luck moms and dads and have fun kids while your at school regardless of this dreadfully inconvenient old syndrome.

Sherry

[ali]

I recall a patient asking, I think Dr. Steinberg (but I cant be sure) this type of question at one of the meetings or conferences I attended. the answer was something like this .......... If a patient is believed to have got GBS from a particular shot, they should definitely stay away from that shot, and possibly others too. He spoke of a patient who had a tetanus shot I think, and got GBS, that same patient had another tetanus shot a couple of years later with the same result, and believe it or not, a third tetanus shot had the same result a few years later. However, many many GBS patients have had shots and suffered no ill effects. Personally, I will not have the flu shot, for many different reasons, and when it comes to another tetanus, I'm actually not sure what I will do as I have had one in the past without incidence when I didnt know that I should possibly not have one.


My daughter 16, is healthy and fit, and was offered the Meningococcal vaccine 2 years ago as a 'precaution', and i said no. I will however rethink that when she goes to college and if she does move into a dorm. I think it should be evaluated on a person to person basis.

[hillsmom]

Can anyone tell me--if an egg based vaccine may cause GBS, then should the person who has GBS history stay away from eggs??

Also, has anyone had seizures as a result of GBS or related medicines?