16 year old - cidp

[smw]

Hello!
I would like to find a support group with people my age in the Sacramento area. Are there any?

[Dawn C]

I am new to this site and have lots of questions. My daughter is 22yrs in a few days and was dx 2/07 with cidp and has had 2 infusions I wish you all the luck in the world and will also pray for you. I am worried scared and very stressed. This is something you never expect and I can't seem to stay away from the pc because I want to learn all that I can. If anyone wants to communicate please feel free to do so at [email]dawn_copeland@yahoo.com[/email] God Bless each and everyone of you. Stay strong and keep the faith.

[trish]

It is very hard, and it gets harder. Everytime I say out lowd, Mason is doing good he has a set back. I hate this, with a passion. If we could figure out a trigger, or some way to keep it under control. Just when you thank you have it, something else happens.

[Kim.72]

My 16-year-old son was diagnosed over 2 years ago.

I wish he would spend a little time on this site--he could really use the support--but he doesn't like to talk a lot about his illness--especially with other kids. He actually tells all his friends he has "back problems"!

My son often feels helpless & hopeless.

I hope that you are able to find the support you need from other kids your age. I'll keep trying to get my boy to join in these discussion boards. (Maybe if there was a cute sixteen year old girl I could get him interested...LOL)