View Full Version : CIP / CIDP
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- Cidp?
- lupus and cidp
- Mgus
- IVIG and Migraines
- Are My Nerves Regenerating?
- I Spoke at a Town Hall
- possitive ANA. Lupus?
- Can you be in remission with CIDP?
- Still searching...
- IVIG cost cut in half
- CIDP and azothiaprine
- Looking for CIDP doctor
- Dr. visit/Namenda
- on our way...
- Prednisone
- IVIG Therapy
- And Then The Fight Started...
- neurontin/gabapentin side effects
- any problems when ordering from GBS/CIDP?
- H1n1,flu, Shots
- New Brand Of Ivig
- In a mess with Solumedrol! Please help.
- need to vent!!!!
- first days at northwestern
- Prayers Needed
- pre-testing continues
- tell tale signs of an impending attack
- Infusion weakness?
- IVIG dosage regime question
- Question about Prednisone
- CIDP and Myasthenia Gravis
- getting people to believe you are sick
- Havent posted in a while
- auto immune combos
- Chemo begins tomorrow...
- Who to beleive..........
- new research, perhaps of promise?
- first chemo finished
- i keep waiting for nausea...
- Hi-I'm a new member
- Another New Member with questions...
- ugh!!
- Just took my 1st Neupogen injection...
- bladder issues
- Cytoxan is Amazing!!
- in the hospital
- Rituxan?? HELP?
- Insurance going up...dont know what I'll do
- Venting...
- Fecal incontinence (pooing ones self)
- anti-MAG
- What Do You Think Caused Your Cidp/gbs?
- The Stem Cell Harvesting Went Well!!
- Problem with Emily's port
- help in the hospital and i know more about his disease than anyone else.
- This and That...
- wish Alice a Happy B Day in THE LIGHTER SIDE
- Small Update
- Home health nurses salary
- Need A Little In Put
- Anti-mitochondrial antibodies
- Two Questions
- ivig side effects after 9 yrs.
- Therapeutic Ride
- Alice--please, Please, Please Be Careful.
- throat paralysis
- Clink, Clink... anyone want to toast my hair loss?
- Totally confused! HELP!
- "Friends as Reminders of Our Truth"
- I want to appologize. I need you guys!!!
- Big Day on Weds.
- another predisone thread
- Pain Control Cocktail
- PE and Medicare
- low potassium
- Had neuro appt. this afternoon
- PE nurses what a resource of knowledge
- Data-mining
- radicular pain what is it? ridiculous
- Heading back to Chicago...
- yeast from prednisone + a thank you
- lupus with a guillian barre like polyneuritis onset etc.
- Prednisone/Methylprednisolone
- Relapsing After Seven Years Of Somewhat Control
- Can anyone shed some light???
- Anyone else live in New Jersey?
- new brand of ivig
- So Happy To Be Back
- back for the big blast
- going to scripps instead of mayo
- alice is in great shape today
- say what? are you kidding me
- acute and chronic pneumonia with lung necrosis
- ivig treatment questions
- serum sickness like syndrome is very probable here is why
- After 7 Months On The Drug, Can Definitely Attest It Worked Against The Great Fatigue
- I need to hear from other MEN with a foley catheter
- what is the most effective way to speak to doctors?
- one more day of chemo...
- muscle cramping is cidp right?
- CIDP and arthritis
- stem cells are all in !
- nerve pain & Update on Ryan
- steroid withdrawl?
- New member, CIDP as of January 2009
- Got medicaid approval for IVIG
- Need Neuro Charlotte, NC
- trapped in a nightmare
- More problems than I first thought
- how many have had all clear lps?
- just getting lots of rest
- Home infusion problems
- Got the call today
- Update on Ryan
- numbers coming up
- what does this test result mean?
- Stuck...no change.
- Cellcept and Cidp
- Csdp??
- share some incidental findings
- Cellcept Discontinuation
- neupogen pain and discharge
- kidney stone then IVIG
- I am getting a port 'installed'.....
- Need help With questions
- made an appt with kens doctor
- Infiltration with chest port
- two different neuropathies or just cidp?
- To Alice--please Read-this Is Important To Me
- Major Vent--countdown To D Day
- MRI and CIDP
- can not hold onto anything
- Nerve biopsy scheduled for 11/24/09
- Gall bladder out this March now CIDP after having GBS in 2005
- Heated up in Southwest Florida!
- facial involvement
- Cidp And Use Of Nebrical
- Cidp?
- Newly Dx'ed
- savella for pain
- goosebumps
- Drs in New England
- Anybody doing sub-cutaneous Ig?
- forearm crutches
- healing..
- update on Ryan
- extreme shoulder muscle pain and pleurisy
- Happy Thanksgiving To All
- IVIG vs Plasma?
- pain meds w/a clear head?
- need a prayer
- Anyone know about Leaky Guy Syndrome?
- Hello again friends.
- Neurologist recommendations in S.E. Wisconsin?
- CIDP & Marriage/Relationships
- Met with new neuro
- ready to surrender to fibromyalgia
- Balance Therapy
- Dr. Gil Wolfe
- Happy News
- Back to neuro on 12/8/09 .. nervous
- Circular Logic
- Pain Anyone???
- Another New Trial For Cidp
- Question and Vent
- Reflexes
- rheumatolgy came back possitive for....
- How long did it take for your results to come back?
- going to kens doctor and scripps friday
- And the results from my nerve biopsy are... Shocking.. (no seriously)
- bOY, THE "MONKEY ON MY BACK" KEEPS GETTING BIGGER!
- dr sahagian is awsome
- has anyone heard how alice is doing?
- Dr's sometimes just can't belive them
- suggestions?
- rheumatology.oxfordjournals.org/cgi/reprint/47/2/208.pdf
- zbrd, laurel, and all--
- New doc says NOT CIDP if I am in pain?
- muscle building
- Percentage of failed marraiges due to CIDP?
- Holiday Blues and flair-up
- Compression Dressings/Support Hose?
- Jumpy eyes...
- Eye Lash Loss???
- I'm afraid I might have poems disease ???
- moving back to San Jose
- Parkinsonism?
- Spirulina and CIDP?
- "Not Interested"??
- Should I get a dog ?
- stem cell/bone marrow transplant
- Skin Biopsy- Yes? No? Please Help?
- Home health etiquette
- Myasthenia Gravis
- problem with toenails
- recent flare-up
- feeling down and sorry for myself.
- breathing difficulty
- Ringing ears!!
- HELP! Looking for good Neurologist....
- results of facial numbness
- stem cell
- Stem cell as an option?????
- CIDP and Double Vision. Anyone else have this?
- Speaking of pain...
- IVIG treatment on hold because of insurance! What's wrong with this???
- So I Wait Some More...
- another wacked out theory
- Cold feet?
- Anyone have problem's Reynaud Syndrome like?
- Interlukin 1 What??????? HELP!
- Update on Ryan
- Just What I Need-another New Problem, But Can Happen To All Of Us
- CIDP and Vitamin B6
- hives after IVIG
- Another neurologist / another dead end!
- CIDP in Japan
- Lab results
- Meds for fatigue?
- Concerned sister
- sorry its been so long
- skin biopsy results
- IVIG day 4
- newbie
- Looking For Emily!!!
- Day 1 after my 5 day inpatient treatment
- breathing difficulty
- Home Health Aide Help with Private Insurance
- How many times.. I told you so ... I told you so
- medics
- Bewildered
- Venting b/c so frustrated with it all.
- Blood Gass
- Lumbar Puncture
- EMG transmitter so my sis can talk!(kind of)
- New experiance
- Mourning Myself
- Cord Blood Banking
- from a CIDP alert of this morning
- anaphylactic reaction
- EMg
- IVIG dosage
- I found Emily!
- Feeling Good
- Appeal for info
- Neurontin???
- new drug?
- waking up shaking and cold
- GI PRoblems
- axonal sensory neuropathy
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