Forum: GBS – Child - GBS/CIDP Foundation International

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This forum contains 72 topics and 417 replies, and was last updated by Emilys_mom 11 hours ago.

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Topic	Voices	Posts	Freshness

Gracie-4 years old Started by: groesch34	5	9	11 hours Emilys_mom
Elmer’s story and a question (4 years old w/ GBS) Started by: Elmers Dad	5	7	21 days RPicciano
Is GBS Recovery suppose to be this painful?? Started by: jennstar74	6	8	176 days hillsmom
Best Children’s Hospitals for GBS Started by: Stephen Fairman	0	9	308 days Stephen Fairman
Sensitivity to noise? Started by: Dee	0	7	364 days Dee
Falling a lot…Is this normal??? Started by: jennstar74	0	10	601 days jennstar74
19 month old w/GBS Started by: Dee	0	5	611 days Dee
Neurontin – Side Effects, feedback? Started by: MattJ	0	7	636 days MattJ
Study Announcement for GBS Started by: gbsfi	0	1	652 days gbsfi
2 Year Old-recovering – Recovery symptoms? Started by: MattJ	0	10	673 days MattJ
Symptoms-When did they start? Started by: MattJ	0	1	698 days MattJ
daughter recently dianosed with gbs for the second time Started by: bobba	0	2	829 days bobba
12 year old – no Diagnosis – ?GBS Started by: 3BoyMama	0	6	1013 days 3BoyMama
Brady in Phoenix Started by: Brady	0	10	1013 days Brady
Update-Brady in Phoenix Started by: Brady	0	5	1013 days Brady

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Centers of Excellence

Expert diagnosis & management of inflammatory neuropathies is critical to our patients. This is what our medical advisory board members had in mind when setting up the new Centers of Excellence program. A year later, we continue to add healthcare facilities providing exactly that.
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Upcoming Special Events
The GBS/CIDP Foundation of Canada is hosting the Canadian Eastern Conference in Halifax, Nova Scotia. This is your chance to learn about all aspects of GBS, CIDP and its variants from initial diagnosis to treatment and rehabilitation. Be sure to check our Community Events page for upcoming chapter meetings in a city near you.

CSL Behring Announces Trial for CIDP Patients
CSL Behring has announced that the first patient has been enrolled in the PATH study, an international clinical trial designed to evaluate the efficacy, safety, and tolerability of two different doses of subcutaneous immunoglobulin (SCIg), compared with placebo, in maintenance treatment of chronic inflammatory demyelinating polyneuropathy (CIDP).

May is GBS/CIDP Awareness Month
During the month of May, in an effort to increase awareness in each of our communities, we encourage everyone to organize activities that highlight GBS, CIDP and their variants. Throughout the world, individuals and groups have organized fundraising events such as walks, runs, bake sales, fashion shows, cocktail receptions, and art shows.

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