Forum: CIP – Child - GBS/CIDP Foundation International

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This forum contains 36 topics and 230 replies, and was last updated by Dawn Kevies mom 39 days ago.

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Topic	Voices	Posts	Freshness

Specialists please Started by: babynzac	4	7	39 days Dawn Kevies mom
CIDP in 9 yr old and pseudotumor cerebri Started by: penguinlady	0	5	132 days penguinlady
Thought I’d let you know Started by: Caysens Nana	0	9	264 days Caysens Nana
Low Dose Naltrexone Started by: MattJ	0	2	264 days MattJ
7 y/o daughter has CIDP; we’re in the military Started by:	0	11	319 days
Pediatric Patients may not tolerate immunoglobulin A content of >15 g/mL Started by: yuehan	0	1	354 days yuehan
Need Neurologist in Sarasota Started by: Lyly	0	2	363 days Lyly
Gamunex Started by: selahsmom	0	2	389 days selahsmom
16 year old – cidp 1 2 Started by: tousley hyde	0	27	435 days tousley hyde
CIDP treatment in Utah Started by: bluecanoe	0	1	609 days bluecanoe
Plasma Exchange in children- Need Advice!! Started by: abbi_n_jen	0	8	619 days abbi_n_jen
4 year old with CIDP – New to Forum seeking support Started by: Laurie	0	4	648 days Laurie
Aversion to light Started by: MattJ	0	2	671 days MattJ
Wbc Started by: selahsmom	0	4	748 days selahsmom
wait till you hear this Started by: selahsmom	0	13	758 days selahsmom

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Centers of Excellence

Expert diagnosis & management of inflammatory neuropathies is critical to our patients. This is what our medical advisory board members had in mind when setting up the new Centers of Excellence program. A year later, we continue to add healthcare facilities providing exactly that.
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Upcoming Special Events
The GBS/CIDP Foundation of Canada is hosting the Canadian Eastern Conference in Halifax, Nova Scotia. This is your chance to learn about all aspects of GBS, CIDP and its variants from initial diagnosis to treatment and rehabilitation. Be sure to check our Community Events page for upcoming chapter meetings in a city near you.

CSL Behring Announces Trial for CIDP Patients
CSL Behring has announced that the first patient has been enrolled in the PATH study, an international clinical trial designed to evaluate the efficacy, safety, and tolerability of two different doses of subcutaneous immunoglobulin (SCIg), compared with placebo, in maintenance treatment of chronic inflammatory demyelinating polyneuropathy (CIDP).

May is GBS/CIDP Awareness Month
During the month of May, in an effort to increase awareness in each of our communities, we encourage everyone to organize activities that highlight GBS, CIDP and their variants. Throughout the world, individuals and groups have organized fundraising events such as walks, runs, bake sales, fashion shows, cocktail receptions, and art shows.

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