Discussion
Forum
Welcome to the GBS/CIDP Discussion Forums. The purpose of these
services is to promote awareness, education and communication regarding
GBS/CIDP and its variants in an atmosphere of mutual respect.
Please note that the discussion boards are not intended to replace
the services of a trained health professional or to be a substitute
for the medical advice of physicians. The statements, views, opinions
and recommendations of chatroom and discussion board users are
strictly those of the authors. GBS/CIDP Foundation International
does not endorse or recommend the opinions of treatment that may
be expressed therein, and shall not be held responsible for any
eventualities arising from the use of such statements, views,
opinions and recommendations. Our discussion boards are private
services, not public networks. Entering these areas is the same
as entering any privately owned facility, like a conference room,
theater, restaurant or shopping mall. The manners and laws of
real life apply.
These services are provided free of charge to members who agree
to abide by the code of
conduct described in the following Guidelines:
We welcome people of all ages, races, religions, genders, national
origins, sexual orientations and points of view to our online
community. We do not tolerate expressions of bigotry, hatred,
harassment or abuse, nor will we tolerate threats of harm. Because
we encourage discussion and exchange of ideas, we do not allow
threatening, defamatory, abusive, tasteless or indecorous statements.
For the same reason, we do not allow sexually explicit material
in conversations, titles, topics or nicknames.
Your right to speak freely here must be exercised with courtesy
and self-restraint. We cannot guarantee the content of comments
that you will receive and from time to time, you may find other
people's comments offensive, harmful or inaccurate.
We encourage members not to give out personal information or
passwords to anyone.
We do not allow any illegal activities. Specifically, we won't
let you advocate illegal conduct or participate in illegal or
fraudulent schemes. You cannot use our boards to distribute unauthorized
copies of copyrighted material, including photos, artwork, text,
recordings, designs, or computer programs. In addition, we do
not allow the trading or swapping of images that are sexually
explicit, obscene or vulgar. Posting or transmitting of unauthorized
or unsolicited advertising, promotional materials, or any other
forms of solicitation to other members is not allowed.
We discourage disruptive conduct: persistent off-topic comments
in a topic-oriented chat or discussion, statements that incite
others to violate our Guidelines.
Members who violate those Guidelines will be banned from using
the discussion boards. We reserve the right to immediately terminate
or suspend access to our services for conduct that we believe
interferes with other peoples enjoyment. We also reserve the right
to amend or change these guidelines at any time and without notice.
If you have questions about our Guidelines, or need to report
a violation, please contact us.
When in doubt about appropriate behavior, remember that the GBS/CIDP
website community is a virtual world,
but the people in it are real.
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Privacy
Statement
The Guillain-Barré Syndrome Foundation International (“GBSFI”)
is extremely concerned about protecting your privacy. The following
will explain our policy on information gathering and storage.
What We Collect:
Any user who wishes to access restricted features on the GBS/CIDP
Forums is asked to complete a registration form. During the registration
process, the user is required to enter certain information, such
as name, email address, mailing address and phone number. Other
requested information, such as interests, birthday and occupation,
is considered optional and entered at the user's discretion.
How We Use It:
We use the information we collect to provide members with a more
personalized website experience, to deliver requested features
such as private messages and email alerts, to improve customer
service and minimize security risks by eliminating the need for
members to transmit sensitive contact data.
How We Store It:
GBSFI takes every precaution to protect our member information
both online and offline. When users request or submit sensitive
information on our website, that information is encrypted during
transport and is stored in that encrypted format while in use
on the site. All member information is restricted to our offices
and is never shared with third parties, resold or redistributed.
Finally, the servers that we store our websites and member information
on are kept in a secure, alarmed environment and monitored 24
hours a day, 7 days a week, 365 days a year.
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Disclaimer
The Guillain-Barré Syndrome/Chronic Inflammatory Demyelinating
Polyneuropathy Foundation International ("GBS/CIDP Foundation")
maintains this website as a convenience to its members and supporters.
This website is designed for educational and informational purposes
only and does not render medical advice or professional services.
The information provided herein should not be used for diagnosing
or treating any health problems or disease. It is not intended
to replace the services of a trained health professional or to
be a substitute for the medical advice of physicians. By using
websites owned and operated by the GBS/CIDP Foundation or its
affiliates, you are agreeing to comply with and be bound by the
following terms of use that may change at any time:
Accuracy and Responsibility
GBS/CIDP Foundation has made its best efforts to ensure that
the information appearing on this website is well-balanced, reflecting
the most up-to-date knowledge and best clinical practice, but
we do not pretend that it can be relevant to all situations, nor
do we guarantee that it is in every respect accurate or complete.
GBS Foundation cannot accept responsibility for the actions of
those who misuse this information.
GBS/CIDP Foundation (including its employees and agents) assumes
no responsibility for the consequences resulting from the use
of the information herein or from the use of any information obtained
from any link, or in any respect for the content of such information,
including but not limited to, errors or omissions, the accuracy
or responsible ness of factual or scientific assumptions, studies
or conclusions, the defamatory nature of statements, ownership
of copyright or other intellectual property rights and the violation
of property, privacy or personal rights of others.
GBS/CIDP Foundation is not responsible for, and expressly disclaims
all liability for, damages of any kind arising out of use, reference
to, or reliance on such information. No guarantees or warranties,
including but not limited to any express or implied warranties
of merchantability or fitness for a particular use or purpose,
are made by GBS Foundation with respect to such information. GBS
Foundation may update or change this website or links to other
websites at any time.
Copyright
Content of this website is copyright unless otherwise stated.
Where copyright applies, visitors can download material for private
research, study or in-house use only. Visitors must not copy,
distribute or publish any material from this website. Any other
use of copyright material requires the formal permission of GBS/CIDP
Foundation.
Links
All links are provided for information and convenience only,
as a value-added service to members, supporters and visitors.
GBS/CIDP Foundation cannot accept responsibility for the sites
linked to, or for the information provided there. Links are neither
referrals nor endorsements of the linked entities.
If you have questions about this Disclaimer, please contact us.
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