Executive Director

Lisa Butler

Foundation Officers

Santo Garcia РPresident

Patricia H. Blomkwist-Markens – Vice President of International Activities

Ginger Crooks – Treasurer

Russell Walter – Secretary

Jim Crone РVice President

Phil Kinnicutt – Past President

Board of Directors

David R. Cornblath, MD

Kenneth C. Gorson, MD

Elizabeth Emerson

Jeffrey S Gerland , DPM

Susan Keast

K. Robert Doehrman

Laura E. Stegossi, Esq.

Joel Steinberg

Marilyn Tedesco

Jim Yadlon

Matthew LaRocco

Members

National Organization for Rare Disorders, Inc. (NORD)

National Coalition for Research in Neurological Disorders

Research! America

Founder

Estelle L. Benson